Our Relationships with Medical Leaders
From the very beginning when we started the RAKMF, we've worked to find professionals in the medical community with which to build relationships with. We rely on their research and expertise, their points of view and their guidance. One particular doctor that we've been working with from the very beginning is
Dr. Marshal Jacobs, the Chief of Cardiothoracic Surgery at St.
Christopher's Hospital for Children in Pennsylvania.
Dr. Jacobs is
also a Professor of Cardiothoracic Surgery at Drexel University College of
Medicine. Andy and Lauren Kaiser first met Dr. Jacobs in 1996 at Deborah Heart and Lung Center in New
Jersey. He was the Chief of Surgery at the time, and their Ryan's Heart
Surgeon.
Our conversations with Dr. Jacobs about starting the RAKMF, focused initially on we would like to help other children and their families in the
fight against congenital heart disease. Our goal initially was to have a local
presence since the fund was only in its first year. We also spoke with him about our concern
about funding the "right" Doctors and Hospitals which we needed guidance to find.
Dr. Jacobs introduced us to an organization that represents almost 100 leading heart
surgeons performing pediatric heart surgery at some of the best medical centers
in North America, as well as some in South America. Its is called the CHSS,
Congenital Heart Surgeon's Society www.chssdc.org.
The general goal of this organization is to improve the care
of patients with congenital heart disease through the exchange of ideas and information with
their peers. This is accomplished through open dialogue on new surgical
approaches, therapies, academic studies and in most general terms, the sharing
of surgical data relevant to improving the outcomes of children facing
potentially several open-heart procedures.
The CHSS also supports the CHSS Data Center and research
staff, which studies multi-institutional outcomes research concerning
selected diagnoses and forms of therapy within the realm of Congenital Heart
Disease. This data is used to look back on past operative methods to decide how
to improve upon them.
Should you have or know of a family or an organization that
could use our help, please CONTACT us here.
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