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December
16th 1996, Lauren and Andy are expecting their first child at Riverview
Medical Center in Red Bank New Jersey. Ryan was born at 2:23 a.m.
just like millions of other babies every year, a seemingly healthy
little boy. Five hours passed before the horrible news was delivered.
Ryan was thought to have a complex heart ailment, and we needed
to find him the best help possible right away. We knew it was bad
when the hospital suggested that we call a Priest. After being briefed
on several hospitals and the surgical teams at each, we decided
on Deborah Heart and Lung Center and left Riverview hospital at
10 a.m., just seven hours after Ryan was born.
Ryan
was diagnosed with Complex Congenital Heart Disease (CHD). He had
several unexplained heart anomalies that included Dextrocardia,
Hypoplastic right ventricle, a ventricular septal defect, (VSD)
and transposition of the great arteries. The surgical team advised
us that Ryan had a very complicated heart ailment that required
three open-heart surgeries, a two-year process that would require
long stays at the hospital. We had a very capable medical team with
vast experience in the care of kids with heart problems. A proven
medical repair was suggested that, with a great deal of skill
and luck, would help Ryan to lead a normal life.
The
next two years were a roller coaster of fear, faith, family and
hope. Ryan was scheduled for three open-heart surgeries at the age
of ten days old, four months and 22 months. Each surgery required
a two-week stay at the hospital. Lauren and I stayed with Ryan every
day, and thankfully had lodging on the hospital grounds.
We
came out on the other side with Ryan stunning the doctors at every
turn. He survived through so many ridiculous medical obstacles,
always being a good patient. His surgeries made corrections that
would allow Ryan to live a very normal life. We left the hospital
for the final time feeling elated that we beat the odds, and Ryan
was coming home for good! (The survival rates of this type of surgery
are actually pretty encouraging, although the risk of death in any
open-heart surgery, child or adult is real).
Ryan
was two years old now, with no signs of any medical problems. He
was on a daily regimen of medicines to help his body adapt, but
he was otherwise a normal healthy little boy. He had no signs of
his past, and we enjoyed watching him grow into a terrific, fun,
happy and intelligent little boy. Our lives had been enriched, and
we were thankful for our little tough guy!
Like
all kids, he grew up so fast, by the time he was three, he had a
baby brother Jack. Ryan was a great big brother, he played with
and taught Jack so much, and what better a teacher. Ryan had manners,
grace, charisma and incredible intelligence of all things.
His
math skills were impressive. I know we are proud parents, but he
understood adding, subtracting, division, multiplication and some
number sets. His pre-school teacher told me he was the smartest
kid she has taught, and that we should consider moving him up a
grade. I thanked her, and joked that she must compliment all parents
that way! A few months after that when Ryan learned the alphabet
backwards; I started to really consider what his teacher said.
It
was great to see Jack and Ryan play together, they had motorized
cars they drove around our house with reckless abandon. They were
bumper car champs. We traveled a lot with the boys, they learned
to swim together, and snow-ski together. Ryan even got to fly a
small plane with his Dad, while Jack slept in the back.
Ryan
was six now and Jack was three. May 17, 2002 was the day that the
boys got a new addition to the family,
Jamie Kirby Kaiser was born, our first girl. What a thrill for us,
healthy and beautiful, we felt that Jamie rounded out our family.
The boys loved her, and planned together to destroy all future baby
dolls of hers. Ryan called Jamie, Jamie princess baby.
During
Christmas 2002, I made a toast to the year past, and those ahead.
I told my family that I felt I was in the Sweet Spot in life.
Lauren and I recognized how much we had been through, and how we
completely appreciated spending Christmas with our three children.
Ryan's medical problems taught us not to take anything for granted.
Looking at him this holiday season, he looked strong and healthy,
and seemed years removed from any life threatening problems. His
doctors agreed too that Ryan was doing incredibly well.
One
month later, on January 25, 2003, Ryan died suddenly and very
unexpectedly.
The
doctors concluded that he may have had an aneurysm, or that the
electric impulse in the heart simply stopped due to the nature of
his heart problem.
Ryan
inspired us every day of his life. He was brave through so many
obstacles without ever complaining. He was passionately interested
in so many unusual things like wolves, whales, pirates, owls, the
planets, fishing and karate. When he was interested in something
he would soak up all the information on the subject just like a
sponge. He made the simplest things more fun and got our whole family
involved in his interests.
Ryan
had a wicked sense of humor that was more in line with an adult,
than that of a six year old. He was never embarrassed of the scar
on his chest, and was happy to explain it if anyone ever asked.
In preschool, Ryan was asked, What was his dream? He said that
he would like to help all of the poor people and help fight the
bad guys. That's the kind of kid we can all learn from!
We
hope to carry on Ryan's passion for life and we feel that the Ryan
Andrew Kaiser Memorial Foundation is something that Ryan would be
proud of.
Andy,
Lauren, Jack and Jamie Kaiser
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We
hope to carry on
Ryan's passion for life
and we feel that the
Ryan Andrew Kaiser
Memorial Foundation
is something that
Ryan would be proud of.
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